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Resources for Parkinson’s Disease Patients & Caregivers  

Parkinson’s disease is a progressive nervous system disorder that affects movement. Finding reliable information on Parkinson’s disease can help patients and families better understand symptoms, treatment options, caregiving needs, and available support services. 

Information and resources for Parkinson’s Disease patients.

The Parkinson’s resources below provide helpful information on Parkinson’s disease, guidance, and support. Palliative care can help patients with Parkinson’s disease manage side effects and navigate treatment, while hospice care can help patients nearing end of life manage pain, stress, and discomfort caused by the illness.  

Additionally, here are some hospice and palliative care financial resources for Parkinson’s disease patients:  

Parkinson’s resources for families and caregivers.  

If you're the caretaker of someone with Parkinson’s disease, or simply a loved one of a patient, the situation can cause stressful. The resources and information on Parkinson’s Disease listed below can help caregivers and family members supporting a loved one with Parkinson's disease. 

  • Parkinson’s Foundation - Offers educational resources, a helpline, local events, support programs, and guidance for individuals living with Parkinson's disease and their caregivers.
  • American Parkinson’s Disease Association - Provides nationwide support groups, educational materials, wellness programs, and Parkinson's disease resources for patients and families. 
  • Rock Steady Boxing - A non-contact boxing-based fitness program designed to help individuals with Parkinson's disease improve balance, mobility, and quality of life.
  • Crossroads Caregiver Resources - Offers caregiver guidance, emotional support resources, and information to help families caring for a loved one with a chronic or terminal illness.
  • Eldercare Locator - Offers caregiver guidance, emotional support resources, and information to help families caring for a loved one with a chronic or terminal illness.
  • Benefits CheckUp - Helps patients and families identify financial assistance programs, prescription savings, and healthcare benefits that may be available to them.
  • CaringInfo - Provides free advance care planning information, caregiving guidance, and hospice and palliative care resources.
  • Caring Bridge - Helps families stay connected during serious illness through free communication and support tools.
  • National Alliance for Caregiving - Resources - Shares caregiving research, educational materials, and practical caregiver resources for families managing long-term illnesses like Parkinson's disease. 
  • Crossroads Grief Support - Provides bereavement resources and emotional support services for families coping with serious illness and loss.

Community resources for Parkinson’s disease near you. 

While there are numerous national Parkinson's disease resources available to patients and their families, local resources, both at the city and state levels, may also be available. Caregiver support, food programs such as Meal on Wheels, in-person and online meet-ups and support groups, and more are among the possible available resources. We suggest that you conduct additional research to see what Parkinson's disease resources and information are available in your area. To find services in your state, go to the Crossroads website.  

Additional Parkinson’s disease resources and helpful tips.

You can reach out to Crossroads 24/7 for more information on Parkinson's disease resources for families, such as patient care and comfort care options. Any questions you may have can be answered by contacting us via email, phone, or live chat. 

Additional hospice and palliative care resources for Parkinson's disease can be found here:

(Please note that Crossroads does not endorse any of the organizations linked above. Patients and their families should conduct their own research before making any healthcare decisions.)

When is hospice recommended for Parkinson’s Disease?

Hospice care may be recommended for individuals with Parkinson’s disease when symptoms become advanced and treatment is no longer improving quality of life. Signs that hospice may be appropriate can include difficulty swallowing, frequent falls or infections, severe mobility limitations, weight loss, advanced dementia, or increased dependence on caregivers for daily activities. 
 
Crossroads Hospice & Palliative Care provides support for patients and families navigating late-stage Parkinson’s disease. For more information about hospice and palliative care services, contact Crossroads Hospice & Palliative Care  

 

When is it time to call hospice? Get a free eligibility guide now.